Since their widely shared essay ‘Sick Woman Theory’ (2016) – an exploration of chronic illness in the face of an indifferent medical industry – Hedva has been an essential and fearless voice in disability art/activism and ‘crip theory’. Meanwhile, the artist who’s avowedly written 500 words a day for 20 years has published essays on mental illness, gender, mysticism and music, and expanded on how individuals subsist in threatening contexts (including in their satirical artworld novel Your Love is Not Good, 2023). But one medium, evidently, is not enough. Over the last decade and a half, as well as performances updating Greek texts with queer, nonwhite protagonists, they’ve made others using voice and guitar, released albums and mounted increasingly cross-disciplinary, accessibility-prioritising gallery exhibitions. (A 2020 show presented in Berlin, as well as online, consisted of a 38-track spoken-word playlist.) Their most recent piece of required reading, wrapping many central concerns into one title, is 2024’s How To Tell When We Will Die: On Pain, Disability, and Doom.
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Power 100
Most influential people in 2025 in the contemporary artworld
54

Johanna Hedva
Artist - Fearless voice in disability art and activism
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